Wednesday, January 25, 2012

Puff Girl Flys Home

Home Sweet Puffiness

Sunday morning I woke with a bit of flying anxiety. I was sort of calm knowing that I had so many steroids in me that my brain was relaxed for the plane home. We landed without any problems or headaches. I was happy to be home,  but already missing the beautiful sunshine.

Monday morning bright and early I packed an overnight bag (just in case) and headed into Mskcc for Brain Mri and 4 hour pain management appointment. The horrible joint pain was throbbing throughout my body. Doctors are trying to wein me off steroids and pain medication. I wasn't have been able to bend, kneel or move normally without wincing in pain. The swelling is absolutely ridiculous and uncomfortable. I have been in bed sleeping since I got home.

The goal is to taper the steroids without disturbing the necrosis in the brain, that is swollen! I can't wait to hear this next plan. I can't come off them or taper without an incident. I have had three!

My Mri on Monday showed more swelling. Now what? Surgery?
Tomorrow is another fun filled day of CT scans and meeting a new Oncologist about my liver and the right plan of Chemotherapy or some ting else less toxic. U-toxic would be great.

Today was a good day...until 6 when I feel asleep on the couch sideways and delirious!
I had a breakfast of champs with my KF....I had bagel envy! My ankles were alive and bony! I was super happy to see some swelling n my face calm down (only lasted until about 4pm)...but I found my cheek bone!

Face Swell Puff Story!

Now for the laughter of it all! Ladies can understand this is quite funny. I am self conscious about the chubby face steroid temp look. It bothers me to look in the mirror and I  feel a bit of defeated from my body. Get it together more puffy from this medicine crap! Only time with De-puff.
I went into a local store and saw the sales girl that I have known for sometime. She asked me how I was feeling....   I said great with smile. Walking closer to me her words were this.....    OH! YOU'RE ON STEROIDS. YOUR FACE IS LIKE MINE WHEN I TAKE THEM!

How do you react to that one? Me? I looked at her and rolled my eyes. Made a point that I wasn't happy with that comment and walked away. Are you kidding me! Talk about making me feel better! My poor friend was speechless! Thank goodness for women like that. She made us laugh. 

This story is better than my  crying sleepy breakdown at Whole Foods the day before. It took me fifteen minutes to put five grocery bags in the car. My fat little fingers, back pains...etc couldn't understand the process of food shopping.  Oh, and the thank you to the impatient lady in the white Camry. Waiting for the perfect spot is great and will not  make me move faster. I put the cart back lady! She kept pulling her car closer to me, like I didn't see her. Strange birds out there!

I have another great story to share. But, right now my psychic mind is telling me to go back to sleep. The other psychic wants to go on television! I promise to share this one tomorrow!


Reminder... Cycle For Survival    We raised..........    $32,353.00  !!!!!!!!!!!      Franks Cyclers! Go to  Franks Team or Frank Marcovitz to check it out!

I have raised a beautiful amount of money that is going towards Rare Head and Neck Cancers  and Sarcoma at MSKCC. Our cycle team would love any support, not just dollar bills. Love and care is so important. If you would like to join us we will be cycling at:

Saturday, February 4th at      Equinox, Roslyn  
Long Island, New York from 1-5 pm

For many of you that need an update about Frank. He is doing and looking fantastic! Carrie said he should be home Tuesday or Wednesday this week! I think you are home Frank! If anyone needs to send a gift or dinners, please email me. I want my friend to be super happy and loved by all. Come to Equinox to see my TEAM Captain!


Thank you to all my SPOHNC Friends.  I appreciate all the emails. Thank you Mary Ann for this nice quote. I am going to share.

Continue to be the strong, brave woman that you are and know that we will continue to keep you and Paul in our thoughts and prayers. To quote one of our famous poets Walt Whitman..."Keep your face toward the sunshine and the shadows will fall behind you!"

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