Tuesday, March 24, 2009

Reporting late

I have to share!

I am blogging at midnight because I never want to forget this spectacular feeling! I am certain that I am on and have been on the Brivanib! I know I said I was on the Placebo..but I did something different. Just like you Elsa, I hate taking the pills and had to figure out another way to take them. When I take them right before bed I get heartburn or one gets stuck in my throat & feels funny. I decided to pop them around 9:30 this evening. Right now I am dizzy, thirsty & exhausted! This is fantastic! I guess my body is getting use to them! My blood pressure is up & I feel like I just downed a bottle of Champagne (feeling tipsy) , gotta love the Brivanib!

That means the pills are working and no more guessing games. 

Monday, March 23, 2009

Spring 2009

Happy Spring!

Paul & walked up a few blocks before my appointment to the St Patrick's Day Parade & then headed back to the hospital for the rest of  my tests.  I had all my fun scans to figure out what's going on in my pretty head. Good news is that I am still STABLE!  This is wonderful & I don't have to go back for another month. I have been stable for 8 weeks now.  I am still on the Brivanib  trial. I still think I am on the placebo...but again last night I felt a little off  after I took them. Who knows what's going on!

St Patricks 09'


Thursday, March 12, 2009

Last Year

I was getting dressed and as I grabbed a shirt, a wave of complete sadness came over me. This happens to me sometimes and I always say it's a reminder of how far I have come. But, I still hate the feeling and am debating if I should throw this shirt out( it's so darn cute). When I came home from Boston I got rid off clothes that reminded me of treatment.  I kept a few things, because I love clothes and couldn't part with them. 
And,  just as I was getting upset I thought about the date. I grabbed my old  journal and read last years entry. It was just around this time.

March 14th 08
I am past the 1/2 way point. I finished 16 radiation treatments and 3 Chemotherapy treatments. I feel like shit! Headaches, belly pains, muscle soreness, back pain, Jimmy legs, burnt skin, dry eyes, nose, mouth...all the things they said would happen , did. 
It's funny that only 2% are allergic to the Taxatere Chemo drug that they gave me. I love being part of the 2%. 
I am finally catching up on my emails. All I can talk about is Boston,  treatments and the weather. Oh, and my precious dogs that I miss so much. 
Paul and I will stay in Boston this weekend. I don't feel like driving home. 

Time fly's by very quickly. But the memories are always still there.