Thursday, March 21, 2013

Spring 2013...and more snow?

Yesterday I finished 5 Radiation treatments to my arm. We zapped the tumor that has been bothering me. It hurts more now than  it has over the past few weeks. It's because it's in the bone. It's swelling and has no where to go. Tumors/legions that are in the soft tissue swell and they aren't as painful. For me anyway. I am also using my arm which doesn't help. 

Thank you Paul,Wayne, Mary & my support team for getting me through another fun city Radiation week. Boy, we have been through many adventures! 

I will now wait patiently for some relief.  This pain is aggravating. 

Spring? It was snowing a few minutes ago here in N.Y. 
I do remember having a beautiful Easter outside in the sunshine a few years ago. I am hoping for another beautiful day. We are hosting Easter Sunday and I am up to 18 family members! Don't worry I am asking for help. Paul and I want to enjoy the day and me fussing over dishes is a pain. I know that he is happier when I ask for help. 
He already does the dishes, laundry...and I love when I see him sweeping! I think I have him trained. Is that possible? I don't want to fake pain...but, this is wonderful. 

I wanted to post a great picture of these stunning flowers Paul brought home for me. He picks them out himself at the florist. I think that is so much more special and sweet.  

Off to get a million things done. 

I need to put the Jelly Beans down. Every flavor is amazing. 

Have a great Thursday

Sunday, March 10, 2013

It's GLOW TIME again!

Thank goodness my computer and cell phone automatically adjust to day light savings time. I just looked over at the clock and was totally confused. Come to think about it, who does that in cyber world? I would say it's enabling me to be lazy! 

This is going to be a quick blog entry.

My left arm (bone) has been giving me grief. I finally found out why I am in so much pain. I have a tumor in my arm! Can you believe that one? It feels like it's broken. 

I have to patiently wait while the Doctors figure out another plan of attack. When I left the hospital on Thursday I was all set up for Radiation. They started the process and simulation. I unhappily received 4 more tattoos to my left shoulder/arm. They gave me a schedule for treatment along with an appointment for a bone scan. I decided to try a clinical trial instead of chemotherapy. I had a plan Friday. Things always change. The Doctors are talking and that's alright with me. They don't ignore me, they know better! 
I am sort of on hold. Tomorrow morning I will find out my plan. Doing the radiation may disqualify me from the trial. We have to make sure this is done the right way. 

My goal is to get out of pain. 

Oh...Good news. The Pazopanib may have helped me. I am off the drug because of my high liver enzymes. But, my recent scans showed shrinking and stable tumors in my liver, lungs and pancreas. The tumors on my vertebrae and arm did grow. The news that my organs have no growth is great. 

I will let you know what I decided.  
How much Radiation have I had and why am I not a walking GLOW stick?