Tuesday, February 26, 2013

The Shuffle

It was a good day.  I have this new feeling of freedom from so many things. I feel a pull, a change. Jumped on the train  and met a friend for coffee/tea at Penn for an hour.  Took a cab to Mskcc for blood and a scan. Then walked 10 blocks to meet Wayne and Mary for a Greek dinner. The Restaurant and food was great. Tasting was a little off. My taste buds are still swollen. It was fresh and delicious. 
Restaurant :  Yafsu on York and 78th Street. Worth the trip. 

That was the short version. Here are some details.

I had the nicest conversation with the gentleman who drew my blood this evening. I see him all the time and we have the best laugh. I think he was reading my mind.  We asked each other how things were going. We both noted that we haven't seen one another for a while. I told him I took a little break until I needed a scan. He opened the drawer next to us. He said, " Only open the draw and let out what you need to. Then shut it. You don't need to spend your life worrying about results and appointments until you have to. Keep the draw shut and you will live your life. This should not takeover your life."

I couldn't believe he said this. Taking that break for a month was fantastic. Now I knee deep in it again worrying. I do have to stay on top of things. I can't hide it in the draw.  Pain makes me see the doctors  more. Everyone knows how it works. Ouch something hurts or you feel something is off. You see the doctor who sends you for a scan. Then you wait for the results. It's the Ouchie shuffle. 

Today was blood work to check on my liver. Last week something was off. I think a new medicine changed my enzymes. I know it's fine...my cute liver. 
Then I headed upstairs to my  MRI that was backed up due to a machine going down. Story of my life. The shuffle and the waiting game. THe 2-3 hour wait! I sat in the kiddie section debating if I should watch a Sponge Bob episode or play with a puzzle. Instead I met Tom. 
A great guy who was at the hospital for the first time. He was getting a scan for his Prostate. You men and this prostate! It's like the ladies version of Breast Cancer. 
I am sure  tons of money will be raised for Testicles now and  we watch Cancers like mine  and others get left in the dust. No wonder all my friends have passed away from Sarcoma or some type of Head and Neck Cancer. Sorry, I just feel like all money should go to research  for all types. Even though I do feel everyone has a different immune system and maybe a special individual cure. That's another blog and hot topic. 
Jessica we have spoken about this (lung cancer) a million times. 

I should get the results in a day or two about my shoulder pain. Blood  results will be in tomorrow.  I will then know if they want me to stay on the Pazopanib. 

I hope everyone is doing good. I know I am happy. Paul is away and I have two dogs cuddling in my bed! They never do anymore. It's just warmer and nice to have them next to me. I feel so loved by them. 

1 comment:

Anonymous said...

Love you my brave shuffling friend!