Another one....
I was so super excited yesterday leaving the Neurologist. I came home and started to blog about how happy I was that I was OFF the crazy steroids. I was finally feeling like myself again.
All good things come to an end....
1:00 a.m.
I woke up with yet another extreme headache. The same screaming kind, and I can't even move it hurts so much. I tried the medicine the Doctor told me to take if I felt a bad headache coming on. But, this wasn't even close to a bad headache...this was worse. Paul called the Doctor and after some time we agreed that I needed to go to the hospital. I just couldn't make the 45 minute trip to the city, to MSkcc. I went to Huntington Hospital instead. I don't even remember getting in the car. It was a quiet night in Emergency. Within minutes they had me hooked up to an IV. They gave me 10 mg of steroids, a little nausea med and happy morphine. I had relief almost instantly. They also gave me a CT scan. Then sent me home to sleep and to continue on steroids!
It was a very long morning. I am feeling better, just exhausted. Back on steroids :( I have to figure out what's going on with my brain. It's not happy and it's making me miserable. I can't keep having these silly head pains. They are so awful.
P.s. My potassium is low.
2 comments:
so sorry. I hope the CT is clean and the doctors can figure it all out for you.
(I grew up in Huntington. We were on the school border so I went to Harborfield's High School. After getting married, we lived in Northport for a few years, then Centerport. My three girls were all born in Huntington Hospital.
I studied Cytology after college at New York Hospital, and we attended the "Tumor Boards" at MSK on Fridays when the doctors presented their cases. Who knew that experience would come in handy for my own diagnosis so many years later).
You hang in there girl, I'm praying for you!
I'm so sorry you've been hurting. I hate steroids, but sometimes we just need them. I hope the steroids will do their job to help your poor brain stop pulsing with inflammation that is still left over from all that radiation. Poor brain! I hope the docs can calibrate the dose of steriods to give you the relief you need without making you feel too weird, and then taper them down sloooowly so you can finally wean off of them entirely.
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