Sunday, February 10, 2013
Brain's & Kisses
Is someone screwing with me? Really, what is going on?
When I started the Pazopanib I actually felt great about it. I made a promise to myself last summer that I wouldn't be forced or pushed into something that I didn't feel right about. No more surgeries or trials. It has to be my choice. Listen to your gut instincts.
I didn't even blink when my Doctor suggested this drug. Why? Maybe because I know there are little options for me. I need to try things to see what works. But, experimenting like a guinea pig means I need to feel o.k. about it. I started this drug already feeling exhausted both physically and mentally. I've been feeling more like myself. Now I am back to square one. Being pushed back and hit pretty hard. I just keep thinking that once my body gets use to the medicine, things will change. These night sweats better change. I am sick of doing laundry!
It has a long Santa Claus list of side effects that have been beyond annoying to me. Why would I just get one? My body likes to have all of them at once! I am back to the swollen tongue and having a hard time eating. I have been brushing my teeth with backing soda and water. Toothpaste burns my little popped up swollen taste buds. Any ideas??? I have really tired everything. Peroxide mix with sea salt (oh the pain) , mouth washes. I even just hang out with a spoon full of organic, raw honey. The worst was the other day when I thought Ambesol could just numb it! People.....don't ever do that! It's like sticking your tongue to a cold pole and screaming! Nothing minty, salty or garlic-y! Tomatoes and sauce is the worst. Paul got me gelato, because the cold is good. Soups that are perfect for this snowy time are awful. I am getting back into cold apple sauce.
Hey....MOM! You make the best. I am putting my order in. Add a little cinnamon.
I have to talk to some of my SPOHNC friends. I need some other ways to brush my teeth before people stop wanting to talk to me! Oh boy can I talk! A sales lady in a furniture store the other day handed me a mint! I am going to think she just wanted me to have one.
The Brain! Abby-Normal!
The MRI of my AMAZING brain showed good results. No tumors and the bleeding is gone. What a relief. The swelling in my face is down and I am starting to see my cheek bones. One great thing...I am coming off Keppra! Silly medicine! I am very excited. One less drug running through the halls of my digestive system. I am thankful for a good scan. Thank you Brain for being good. Now tell the rest of our body.
Sweet Heart day is almost here. Have you chosen your Valentine???
Love Hugs Kisses