tag:blogger.com,1999:blog-4409756465500155346.post5776890130981409763..comments2023-07-08T08:57:24.573-07:00Comments on Michelle's Blog: Doctor Bully & ExhaustionMichellehttp://www.blogger.com/profile/02992829768053983637noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-4409756465500155346.post-72667829552671696702011-11-16T08:31:44.751-08:002011-11-16T08:31:44.751-08:00Slurp, sleep, slurp, sleep, same difference. I nee...Slurp, sleep, slurp, sleep, same difference. I need some slurp, too. (That will leave people scratching their heads.)<br /><br />Thanks for the kind wishes you left for me on my blog. You are soooo funny. But don't worry too much about me. I'm mean and tough, so I can deal with it.<br /><br />Yes, they think they got all my tumors during the liver surgery in January, but there were some tiny little "indeterminate" spots that they weren't sure about: maybe cancer, maybe just little cysts. If they were cancer, the chemo kept them down, but now that I've been off chemo for a while, we'll be able to tell whether they've grown like tumors do or have sat there quietly like polite little cysts.<br /><br />I started a new drug this morning, Lyrica for my CIPN ("chemo induced peripheral neuropathy") in place of the gabapentin that wasn't working all that well. Don't you love the names they come up with for these drugs!?!? Will Lyrica make me "lyrical"? I dunno. But in addition to helping with the CIPN pain, they say it will also have the side benefit of improving my attitude. (That's probably the real reason my new onc was happy to switch me to it!)<br /><br />My best to Paul.The Astonishing FartManhttps://www.blogger.com/profile/01979814835615698427noreply@blogger.comtag:blogger.com,1999:blog-4409756465500155346.post-23052899157722046742011-11-07T06:56:23.279-08:002011-11-07T06:56:23.279-08:00You go girl! I'm proud of your pro-active self...You go girl! I'm proud of your pro-active self. I love you and keep us updated. <br />JessAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4409756465500155346.post-38225595635920913842011-11-03T06:55:33.647-07:002011-11-03T06:55:33.647-07:00I'm thinking about you, Michelle on LI... pray...I'm thinking about you, Michelle on LI... praying for your health. NED is not a promise, is it? I never feel at ease with that. I still feel like the follow up routine will go on and who knows what the next scan will show. If I could go NED for a year, maybe then I'll start to feel like it's true.<br />I do know and see that head and neck patients have it bad. Your treatment effects so much of what runs our body. Get those meds balanced. Try to feel good and do a little bit to make you feel productive and "normal". Maybe day by day you will start to feel better. <br />I have my post surgery/radiation follow up scan on Monday... we'll see next week what lurks beneath.Sjnhttps://www.blogger.com/profile/01248247475325728054noreply@blogger.comtag:blogger.com,1999:blog-4409756465500155346.post-36218590156821666322011-11-02T15:15:21.506-07:002011-11-02T15:15:21.506-07:00I'm so sorry. And I do know exactly what you a...I'm so sorry. And I do know exactly what you are saying. It's so hard to deal with this doctoring stuff on top of being sick at the same time. I've had some similar problems with my doctors, too. I thought it was my RESPOSIBILITY to keep my doctors informed about my symptoms. But sometimes they basically tell me I should stop complaining and just be thankful to be alive. Well, I AM thankful to be alive, probably a lot more thankful to be alive than THEY are, since I've had the experience of balancing on the edge of the gravestone, and they haven't. But, selfish me, I want to be alive AND to feel halfway decent at the same time, so that I can enjoy being alive. And I do still enjoy being alive, no matter what, but it is a real challenge to enjoy it if you feel like dogpoo and are worried that something is going to explode somewhere.<br /><br />Well, hang in there girl. And really do try to be diplomatic with your doctors, even when they don't deserve it. (I had one quit on me, in the middle of a medical crisis, because he didn't appreciate me raising questions about some things he was doing, and things he was forgetting to do. I guess maybe he just didn't like my personality, which is understandable when you consider some of the mind-altering (and body altering) drugs I've been on.<br /><br />Hang in there. Try not to get to frustrated. And remember that there are some "perfect strangers" out there who are thinking about you, thinking about Michelle on Long Island!The Astonishing FartManhttps://www.blogger.com/profile/01979814835615698427noreply@blogger.comtag:blogger.com,1999:blog-4409756465500155346.post-69691921496158029442011-11-01T16:51:10.996-07:002011-11-01T16:51:10.996-07:00Michelle, It sucks that you still aren't feeli...Michelle, It sucks that you still aren't feeling well despite your "cancer free" diagnosis. I'm so sorry.<br />Good for you for taking a stance and demanding some answers. <br />((((((((HUGS)))))))<br />Love you....<br />PamAnonymousnoreply@blogger.com